Henry had his first cardiology appointment for 2016 on Monday. We went five months in between appointments, almost as long as his early childhood stay. He had an EKG as well as an echo. There is still some mild tricuspid regurgitation, and his heart function looks good. We were told to come back in six months!
On Wednesday Henry had his feeding clinic visit. This was originally booked back in January when Henry was barely eating table foods and his majority calorie intake was his formula. We had switched over to pediasure in late January. Henry just amazed the group who watched him! He was reviewed over by his Special Care doctor, a development phyiscologist, OT, and a dietician. We got nothing but praised with his progress and were told he really doesn't need extra help with feeds. We are to transition to whole milk and see if Henry continues to grow. If so, drum roll please...we can get the gtube removed! We are so excited by this (though slightly disappointed they wouldn't remove it today)
Henry has had a few colds this season, but none has landed us in the hospital. We are extremely grateful for that.
He isn't walking by himself yet, but is an excellent cruiser, loves pushing his walker, will walk with assurance of hand holding or just with one of our fingers, he just won't do it on his own.
OT has come up with some therapy for Henry to help build up his breathing, as he still does most with the belly rather than using his upper chest. Hopefully with this it will help with his walking, improve his babbling, and also help him to be more productive when he coughs.
And now for some pictures!
Henry at Special Care
Easter 2016
We are so thankful for all his progress! We continue to appreciate everyone's thoughts and prayers.
