As some of you may know, we were called within a week after the cancellation, and are now "in ink" for Thursday, May 31st. Less than two weeks away!
Henry has been doing great. We received a care package from the organization Sister's By Heart. It had a couple of books in it that we have been reading to Henry. Currently, we have been reading "Super Fontan" which is about a super hero who is helping a little boy who is going in for his 3rd open heart surgery (the Fontan) like Henry is. We even received a red cape for Henry!
As you can imagine, my stress level is pretty high right now. We meet with the new surgeon earlier this month, and although we will miss Dr. Pastusko, we think Dr. O'Brien will do a great job of taking care of Henry. Dr. O'Brien even told us he was going to contact Dr. Pastusko to tell him how great Henry is doing :-)
Henry's last day at daycare will be the 25th. With Monday being a holiday, and Wednesday we will be doing pre-admission testing, we decided it would be best to keep Henry out of daycare for the day, and spend some quality time with each other.
This hospital stay will be much shorter than when he last had open heart surgery. Average (let's cross our fingers and pray) we should only be in the PICU for a couple of days, then move on to the floor for the rest of his hospital recovery. Henry may need to be put on a fluid restrictions, and possibly a low fat diet. This will be determined after surgery, and depending on how much and what kind of fluids he will drain.
Henry will need need to be home and recovering for a good portion of the summer. Henry will be going home on a lot of diuretics, as well as oxycodone to help manage any pain he may still have. We will most likely have his first follow up visit two weeks after being discharged from the hospital.
Thank you everyone for your support, thoughts and prayers! They had warned us this surgery will be the hardest on everyone emotionally, and they were certainly right. We need to keep Henry healthy these next few weeks, so extra prayers for our health are greatly appreciated!!!
