Henry is doing fantastic! He transitioned to the Preschool room at daycare and has been learning a lot! Henry can resight his ABCs and is currently working on counting to 20. His other goal is potty training.
Over the weekend we took apart the crib and made it to a toddler bed. Thoughts prayers and positive thoughts that this transition goes well. He did pretty good night one.
Since May, Henry has been battling tonsillitis on and off. We finally got a referral back to ENT. However, they are being cautious and want to wait until his tonsils flare up again before making the decision to remove them. Since there is a concern with bleeding, the doctors are more cautious about this procedure than they were with the ear tubes last year (which, by the way, still look great)
On top of the tonsillitis we have been trying to get Henry to the cath lab. Because of all the illnesses, the cath lab kept getting pushed back. Finally after the last cardiology visit a couple of weeks ago, along with some xrays and blood work, the cath lab has been postponed until the Spring. They will be doing measurements for the next open heart surgery, the Fontan. Oh and about that blood work. Remember us talking about BNP levels? Henry’s got as high as 77,000. The results from the last test was at 348. The lowest it has ever been recorded 😊
Henry will not be followed after he turns 3 by TARC. He will be aged out of the tiny-k program. Because he is doing so well, he will most likely not be picked up by the area school program.
Henry helped choose his Halloween costume this year. His daycare will be visiting the pumpkin patch this Friday. Last year he was unable to attend due to appointments at Children’s Mercy.
Saturday we will be walking the Topeka Heart Walk. Henry and his other local area heart buddies had their picture taken for the occasion. If you are free, we would love for you to join is. The walk starts at 10am at Washburn University. It is free, but donations are welcome.
