On the recovery road

We are not even two weeks post surgery and today we did not give any pain medicine to Henry! What a little rock star, or as he will say, Super Fontan. FYI, Sisters by Heart has a cute book called Super Fontan in their care packages for kids who will be having the Fontan Surgery. It’s where the cape came from too!

http://www.sistersbyheart.org/content/nominations

Wednesday will be a test for all three of us, as we will be heading over to Stormont Vail to have blood drawn to check on the blood thinner levels. These shots are not to be taken lightly. They have been our largest struggle since getting home. We have started a sticker chart for Henry for each time slot he is either doing medicine or having the Lovenox shots. Tonight we even entertained Henry by going to a different room, and having a small bag of M&Ms afterwards.

Henry is doing well on the liquid restriction. He is currently limited to 12 ounces of water a day. This hasn’t been as big of a struggle, but he will ask for water, so we will offer him something else. For the most part, he will take us up on the offer. We have stopped giving him a glass of water to go to bed with for the time being.

The fat restriction (41-45 grams) hasn’t been too bad either. I won’t be taking him to Starbucks and the Farmers Market while on the restriction, as his favorite thing is chocolate croissant. (Just one is half his allowed fat grams for the day)

Thank you friends and new friends for the wonderful things that have been sent to Henry! They have allowed us to do some fun things rather than just chilling in front of the screen.

We head back to Children’s on Friday to have more blood drawn, a chest xray, and visit with the surgeon to see how everything is healing.

Thanks everyone for your support and prayers!