...Different Day

It's difficult for us to say where we are at right now. Henry began the week still on bowel rest. An ultrasound Monday showed the pneumatosis had cleared, and an echo on Tuesday showed there was no negative change in his heart function. So, we restarted feeds on Tuesday. Henry had a pretty good week, since he was eating, but he started getting a bit fussy Thursday afternoon. This morning, he had another spot of blood in his stool. The X-ray was negative for pneumatosis, and after some confusion, the doctors decided the ultrasound was negative, too. To be safe, Henry is being put back on antibiotics and bowel rest through the weekend. After that...

The PICU doctors and nurse practitioners are working with some gastroenterologists on a feeding plan. There are two initial thoughts: that we need to remove any possible allergens (dairy, soy, eggs) from his milk, i.e. Paige's diet; we stretch his feeds over a longer period of time. It's likely that we will restart his feeds by running formula continuously. 

For now though, we wait.