We introduced Henry to Lily as soon as we got home. Lily seems unimpressed, but is glad Jason and I are home. She has not hissed or attacked Henry, so we consider that a win! When we are playing on the floor, she will walk by acting like she isn't checking Henry out, but we know she is. Lily does seem annoyed when he cries, since she is unable to sleep peacefully whenever she wants to.
We walked Henry around the house, and there were lots of fun things to look at! Henry seems to be very fascinated by ceiling fans (like a fast moving mobile). Henry barely slept during the day on Thursday, there were just too many awesome things to look at. He slept in the Pack-N-Play in our room that first night, and woke up a few times, but nothing terrible. I slept with my head at the foot of the bed so I could just put my arm in to settle him back down.
We had a good weekend - the first weekend this year that both Jason and I spent together in our own house! Friday night we took him out for a walk around the neighborhood. It was so nice to do something "normal". Friday was also Henry's first night in his room, and in his own crib. He did wake up a few more times during the night, but again, nothing I would not have expected from a five and a half month old. The last couple of nights, he has done even better, sleeping for six to eight hours in a single stretch!
On Friday we had home health care come by. They will be coming by twice a week for four weeks to check on Henry's heart rate, blood oxygen level, and weight. The nurse also put in a referral to TARC so that we can get some extra assistance on Henry's development. So far Henry seems to be developing very well, but is about a month behind. He basically lost that month while he was intubated. Already though, we have seen such a change in Henry since we got home. There are so many more things to see and so much more space to play that we have seen Henry making excellent progress. He has started reaching for things and can get himself up on his side (his head still seems too heavy to let him roll!)
On Monday, Henry's pediatrician finally got to meet him in person, after having read about him for five and a half months! Henry is tolerating his continuous feeds and continues to grow. Since we left the hospital, he has gained nearly 11 ounces! We will have many follow up appointments over the next few months with our pediatrician and the various clinics at Children's Mercy. By the end of July, we hope to have a plan in place to move him off of the continuous feeds, so we can reintroduce bottles.
We are so glad and thankful we have finally made it home! As we move forward, the updates may come less frequently, as we adjust to our new family life. Remember, no news is good news! We are grateful for everyone who has followed us along this journey and appreciate everyone's continued thoughts and prayers!
We walked Henry around the house, and there were lots of fun things to look at! Henry seems to be very fascinated by ceiling fans (like a fast moving mobile). Henry barely slept during the day on Thursday, there were just too many awesome things to look at. He slept in the Pack-N-Play in our room that first night, and woke up a few times, but nothing terrible. I slept with my head at the foot of the bed so I could just put my arm in to settle him back down.We had a good weekend - the first weekend this year that both Jason and I spent together in our own house! Friday night we took him out for a walk around the neighborhood. It was so nice to do something "normal". Friday was also Henry's first night in his room, and in his own crib. He did wake up a few more times during the night, but again, nothing I would not have expected from a five and a half month old. The last couple of nights, he has done even better, sleeping for six to eight hours in a single stretch!
On Friday we had home health care come by. They will be coming by twice a week for four weeks to check on Henry's heart rate, blood oxygen level, and weight. The nurse also put in a referral to TARC so that we can get some extra assistance on Henry's development. So far Henry seems to be developing very well, but is about a month behind. He basically lost that month while he was intubated. Already though, we have seen such a change in Henry since we got home. There are so many more things to see and so much more space to play that we have seen Henry making excellent progress. He has started reaching for things and can get himself up on his side (his head still seems too heavy to let him roll!)On Monday, Henry's pediatrician finally got to meet him in person, after having read about him for five and a half months! Henry is tolerating his continuous feeds and continues to grow. Since we left the hospital, he has gained nearly 11 ounces! We will have many follow up appointments over the next few months with our pediatrician and the various clinics at Children's Mercy. By the end of July, we hope to have a plan in place to move him off of the continuous feeds, so we can reintroduce bottles.
We are so glad and thankful we have finally made it home! As we move forward, the updates may come less frequently, as we adjust to our new family life. Remember, no news is good news! We are grateful for everyone who has followed us along this journey and appreciate everyone's continued thoughts and prayers!
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