Moved up, 3 year coming home anniversary

Greetings from Children’s Mercy!
Last Tuesday, I received a call that the hospital had a cancellation, and asked if we would like to move our appointment to Thursday! So we took it!
Henry did great. The day was long, and we finally were reunited around 3. They made him a Chase sticker for his chest.

Henry also had his shortest stay in the ICU. We moved up to the floor a little over 24 hours.
He continues to do better each day. Henry is on liquid restriction, as well as can only have 6 oz of water a day. He had also been placed on a low fat diet, which we will need to stay on for at least 6 weeks.

He will stay on oxygen while he still has drain tubes. Walking around will help, as well as some diuretics.

We also celebrate today for Henry’s 3rd year anniversary of coming home! He has certainly made so much progress since then!

Sorry its short, but Henry keeps us pretty busy right now, so I am doing this during a morning nap.

Thanks everyone for your prayers! We are incredibly grateful for everyone’s support, love, and thoughts!

Oh! Prior to surgery, Henry’s O2 levels were in the low 80s. We haven’t seen what he is like off oxygen, but with half a liter, he is running 98-100 while resting/sleeping! He will most likely be in the mid 80’s to low 90’s once he doesn’t have that support.