Sorry for the late update. Henry is doing well. His heart cath went very well this morning and the doctors decided he does not need any intervention at this point. They saw and were able to measure what they were expecting to find, and nothing stood out as critical. There is some slight narrowing in his neoaorta, but the blood flow is much better than indicated in his echos. They also saw his mild tricuspid valve regurgitation, but it is nothing worth messing with for a long time and will not hold him back. While in there, the doctors went ahead and got the measurements they will need for his second surgery, the Glenn procedure, so hopefully he won't need another one before then. Henry is still far too small and weak for that next operation, but it's possible he will get it on the earlier part of the window (3-6 months instead of 6-9) to get him a better, stronger physiology.
So, while the news out of his cath was good, it was also a bit unsatisfying. Henry's heart is still working harder than we would like. Right now, he has to grow. If his body is having to work extra hard to take his feeds, we may need to take a step back to support him so those calories can go to size instead. This might mean limiting his bottle feeds or going back on multi one for a time. Whatever the answer, it is likely that he is going to remain at Children's Mercy for a while longer, so he can be monitored closely as he tries to grow.
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